Regular Article| Volume 9, ISSUE 8, P598-604, December 2000

Compliance with health regimens of adolescents with epilepsy

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      The purpose of this paper was to describe the compliance of adolescents with epilepsy and some factors connected to it. Altogether 300 individuals with epilepsy aged 13–17 years were randomly selected from the Finnish Social Insurance Institution’s register. Every fifth person on the list was included in the sample. Seventy-seven per cent (n= 232) of the selected adolescents with epilepsy returned a questionnaire sent to them relating to compliance. The data were analysed using the SPSS software. Twenty-two per cent of the adolescents with epilepsy felt that they complied fully with their suggested health regimens, while 44% placed themselves in the category of ‘satisfactory compliance’, and the remaining 34% reported poor compliance. Compliance with their recommended life-style was poorest, while the highest degree of compliance was recorded for medication. Background variables, such as the duration of the disease, exercise, smoking, alcohol-intake and the number of seizures, were statistically significantly related to compliance (P< 0.001). Good motivation, a strong sense of normality, experience of results, subjective outcome, energy and will-power, support from parents, physicians and nurses, and a positive attitude towards to the disease and its treatment, no threat to social and emotional well-being and no fears of complications and no fear of seizures explained good compliance (P< 0.001).




        • Galletti F.
        • Rinna A.
        • Acquafondata C.
        An insight into children’s and adolescents’ experience of seizures and epilepsy.
        Seizure. 1998; 7: 309-316
        • Seiffge-Krenke I.
        Chronisch kranke Jugendliche und ihre Familien: Belastung, Bewältigung und Psychosoziale Folgen. Kohlhammer, Stuttgart1996
        • Michaud P.A.
        • Frappier J.Y.
        • Pless I.B.
        Compliance in adolescents with chronic disease.
        Arthritis Care Research. 1991; 8: 329-336
        • Adams S.
        • Pill R.
        • Jones A.
        Medication, chronic illness and identity: the perspective of people with asthma.
        Social Science and Medicine. 1997; 45: 189-201
        • Kyngäs H.
        • Hentinen M.
        • Koivukangs P.
        • Ohinmaa A.
        Young diabetics’ compliance in the framework of the MIMC model.
        Journal of Advanced Nursing. 1996; 24: 997-1005
        • Buck D.
        • Jacoby A.
        • Baker G.A.
        • Chadwick D.W.
        Factors influencing compliance with antiepileptic drug regimens.
        Seizure. 1997; 6: 87-93
        • Day R.A.
        • Love S.
        • Popowich J.
        • Pilip V.
        Client education in a rehabilitation anticonvulsant out patient clinic.
        Canadian Journal of Rehabilitation. 1992; 6: 23-32
        • Jarvie S.
        • Espie C.A.
        • Brodie M.J.
        The development of a questionnaire to assess knowledge of epilepsy.
        Seizure. 1993; 2: 179-185
        • Desai P.
        • Padma M.V.
        • Jain S.
        • Macheshwar M.C.
        Knowledge, attitudes and practice of epilepsy: experience at a comprehensive rural health services project.
        Seizure. 1998; 7: 133-138
        • Goldstein L.H.
        • Minchin L.
        • Stubbs P.
        • Fenwick P.B.C.
        Are what people know about their epilepsy and what they want from an epilepsy service related.
        Seizure. 1997; 6: 435-442
        • Neufeld M.Y.
        • Sadeh M.
        • Cohn D.F.
        Stress and epilepsy: the Gulf war experience.
        Seizure. 1994; 3: 135-139
        • Chigier E.
        Compliance in adolescents with epilepsy or diabetes.
        Journal of Adolescents Health. 1992; 13: 375-379
        • Kyngäs H.
        The theoretical model of compliance of young diabetics.
        Journal of Clinical Nursing. 1999; 8: 73-80
        • LaGreca A.M.
        Peer influences in pediatric chronic illness: an update.
        Journal of Pediatric Psychology. 1992; 17: 775-784
        • LaGreca A.M.
        • Schuman W.B.
        Adherence to prescribed regimens.
        in: Roberts M.C. Handbook of Pediatric Psychology. Guiltford Press, New York1995: 55-83
        • Hauser S.T.
        • DiPlacido J.
        • Jacobson A.M.
        • Wilett J.
        • Cole C.
        Family coping with an adolescent’s chronic illness: an approach and three studies.
        Journal of Adolescence. 1993; 16: 305-329
        • Regan K.J.
        • Banks G.K.
        • Beran R.G.
        Therapeutic recreation programmes for children with epilepsy.
        Seizure. 1993; 2: 195-200
        • Kleinman A.
        • Wnag W-E.
        • Li A-C.
        • Cheng X-M.
        • Dai X-Y.
        • Li T-K.
        • Kleinman J.
        The social course of epilepsy: chronic illness as social experience in interior China.
        Social Science and Medicine. 1995; 40: 1319-1330
        • Buck D.
        • Jacoby A.
        • Baker G.A.
        • Ley H.
        • Steen N.
        Cross-cultural differences in health-related quality of life of people with epilepsy: findings from a European study.
        Quality of Life Research. 1999; 8: 675-685
        • Dilorio C.
        • Henry M.
        Self-management in persons with epilepsy.
        Journal of Neuroscience of Nursing. 1995; 27: 338-343
        • Chandra R.S.
        • Dalvi S.S.
        • Karnad P.D.
        • Kshirsagar N.A.
        • Shah P.U.
        Compliance monitoring in epileptic patients.
        Journal of Associated Physicians in India. 1993; 41: 431-432
        • Woolgate R.L.
        Adolescents’ perspectives of chronic illness: “it’s Hard".
        Journal of Pediatric Nursing. 1998; 13: 210-223
        • Bosley C.M.
        • Fosbury J.A.
        • Cochrane G.M.
        The psychological factors associated with poor compliance with treatment in asthma.
        European Respiratory Journal. 1995; 8: 899-904